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Author Topic: Rare Disease Day 2018  (Read 191 times)


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  • Join Date: Jan 2015
  • Location: Massachusetts, USA
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  • Not a doc, just a patient
Rare Disease Day 2018
« on: January 28, 2018, 10:21:56 PM »
How will you be participating in Rare Disease Day this year? It's just one month away, on February 28. You can help spread awareness of rare diseases generally and your own rare disease in particular by downloading our toolkit at http://xlhnetwork.org/files/8915/1693/3017/rarediseasedaytoolkitfinal.pdf

Or become a Rare Disease Day Champion at https://xlhnetwork.networkforgood.com/projects/45764-rare-disease-day-champions

You can also #shareyourrare at Facebook by adding a Rare Disease Day frame to your Facebook profile here: ow.ly/5jot30hSp3C