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Author Topic: Where in the World is The XLH Network, Inc.?  (Read 538 times)

GinJones

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  • Join Date: Jan 2015
  • Location: Massachusetts, USA
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  • Not a doc, just a patient
Where in the World is The XLH Network, Inc.?
« on: December 28, 2017, 04:53:22 PM »
Here's where you'll find us (in person, not just virtually) in 2018:

February 27, 2018: North Haven, CT
     Quinnipiac University Rare Disease Day program (public welcome)

March 2-4 2018: Argentina
     XLH patient advocacy meeting

March 16-18, 2018: Madrid, Spain
     XLH patient advocacy meeting

April 7, 2018: Novato, California
     Ultragenyx Pharmaceutical's Patient Day
     https://digital.lenos.com/keymeetings/ultragenyxpatientday2018/Content/Welcome
     Informal Network get-together the night before, details TBD

May 16-20, 2018: Boston, Massachusetts
     American Academy of Clinical Endocrinologists' annual conference

September 28 to October 1, 2018: Montreal, Canada
     American Society for Bone and Mineral Research's annual conference

October 5, 2018: Baltimore/Washington area (details to follow)
     Symposium on Hypophosphatemia: Past, Present and Future

October 5-7, 2018: Baltimore/Washington area (details to follow)
     XLH Day

November 206, 2018 Orlando, Florida
     American Academy of Pediatrics annual conference
« Last Edit: January 21, 2018, 07:41:46 PM by GinJones »